[1] WANG R,LI Z,LIU S,et al.Global,regional and national burden of inflammatory bowel disease in 204 countries and territories from 1990 to 2019:A systematic analysis based on the Global Burden of Disease Study 2019[J].BMJ Open,2023,13(3):e065186. [2] ROGLER G,SINGH A,KAVANAUGH A,et al.Extraintestinal manifestations of inflammatory bowel disease:Current concepts,treatment,and implications for disease management[J].Gastroenterology,2021,161(4):1118-1132. [3] MIKOCKA-WALUS A,KNOWLES S R,KEEFER L,et al.Controversies revisited:A systematic review of the comorbidity of depression and anxiety with inflammatory bowel diseases[J].Inflamm Bowel Dis,2016,22(3):752-762. [4] 宋彦锡,张江山,周艳辉,等.“斯金纳”理论下的健康教育配合家属参与式心理干预对脑中风偏瘫患者希望水平、心理弹性、应对方式的影响[J].中国健康心理学杂志,2023,31(12):1831-1836. [5] GECSE K B,KHANNA R,van den BRINK G R,et al.Biosimilars in IBD:Hope or expectation?[J].Gut,2013,62(6):803-807. [6] KOSTEV K,LOOSEN S,RODERBURG C.Prevalence of hospitalization and readmission in patients with inflammatory bowel diseases[J].Dig Dis Sci,2022,67(7):3471. [7] SNYDER C R,HARRIS C,ANDERSON J R,et al.The will and the ways:Development and validation of an individual-differences measure of hope[J].J Pers Soc Psychol,1991,60(4):570-585. [8] LIANG Y,LI Y,ZHOU M.Effects of positive psychological interventions on psychological outcomes,quality of life,and inflammation biomarkers in inflammatory bowel disease patients:A meta-analysis of randomized controlled trials[J].Gastroenterol Nurs,2024,47(6):455-466. [9] 尚星辰,林征,卞秋桂,等.炎症性肠病病人希望水平及其影响因素研究[J].护理研究,2019,33(10):1665-1669. [10] FENG L,CAI X,ZOU Q,et al.Exploring the management and treatment of IBD from the perspective of psychological comorbidities[J].Therap Adv Gastroenterol,2024(17):17562848241290685. [11] 顾弘,李霞,黄蓉,等.炎症性肠病患者的希望水平现状及影响因素分析[J].交通医学,2023,37(4):426-429. [12] RUBIN D T,SNINSKY C,SIEGMUND B,et al.International perspectives on management of inflammatory bowel disease:Opinion differences and similarities between patients and physicians from the IBD GAPPS survey[J].Inflamm Bowel Dis,2021,27(12):1942-1953. [13] 汪永华,孙层,崔婷,等.炎症性肠病患者希望水平与应对方式、心理韧性和社会支持的关系研究[J].现代生物医学进展,2021,21(20):3937-3940,3949. [14] BOKEMEYER B,PLACHTA-DANIELZIK S,STEINER I M,et al.Inflammatory bowel disease(IBD)patients with impaired quality of life on biologic therapy benefit from the support of an IBD nurse specialist:Results of a randomised controlled trial in Germany(IBDBIO-ASSIST study)[J].Aliment Pharmacol Ther,2024,59(9):1082-1095. [15] 孙素亚,石东辉,陈伟仙,等.炎症性肠病青少年向成人过渡期准备困境的实质性研究[J].中华护理杂志,2023,58(20): 2446-2452. [16] ZHOU X,KERN I,ROTHE U,et al.Growth development of children and adolescents with inflammatory bowel disease in the period 2000-2014 based on data of the Saxon pediatric IBD registry:A population-based study[J].BMC Gastroenterol,2024,24(1):25. [17] HERTH K.Development and refinement of an instrument to measure hope[J].Sch Inq Nurs Pract,1991,5(1):39-51,53-56. [18] HERTH K.Abbreviated instrument to measure hope:Development and psychometric evaluation[J].J Adv Nurs,1992,17(10):1251-1259. [19] 赵海平,王健.血液透析患者的社会支持和希望[J].中华护理杂志,2000,35(5):306-308. [20] SARTORE A C,GROSSI S A.Herth Hope Index:Instrument adapted and validated to Portuguese[J].Rev Esc Enferm USP,2008,42(2):227-232. [21] YAGHOOBZADEH A,PAHLEVAN S S,ONG F S,et al.Cross-cultural adaptation and psychometric evaluation of the herth hope index within a sample of Iranian older peoples[J].Int J Aging Hum Dev,2019,89(4):356-371. [22] NAYERI N D,GOUDARZIAN A H,HERTH K,et al.Construct validity of the herth hope index:A systematic review[J].Int J Health Sci(Qassim),2020,14(5):50-57. [23] 赵雨晨,黄琛.炎症性肠病相关易感基因及其作用机制的研究进展[J].广州医药,2025,56(3):300-309. [24] WARE J J,SHERBOURNE C D.The MOS 36-item short-form health survey(SF-36).I.Conceptual framework and item selection[J].Med Care,1992,30(6):473-483. [25] 李鲁,王红妹,沈毅.SF-36健康调查量表中文版的研制及其性能测试[J].中华预防医学杂志,2002(2):38-42. [26] MIN H P,HU W,LEE Y Y,et al.Health-related quality of life of patients with inflammatory bowel disease in Singapore[J].Intest Res,2019,17(1):107-118. [27] SCHRANK B,STANGHELLINI G,SLADE M.Hope in psychiatry:A review of the literature[J].Acta Psychiatr Scand,2008,118(6):421-433. [28] VARVARYNETS A V.Effects of biological therapy on quality of life and psychoemotional status of patients with ulcerative colitis[J].Wiad Lek,2021,74(10 cz 2):2610-2613. [29] SEXTON K A,WALKER J R,TARGOWNIK L E,et al.The inflammatory bowel disease symptom inventory:A patient-report scale for research and clinical application[J].Inflamm Bowel Dis,2019,25(8):1277-1290. [30] 陈梦雪,王宏刚,谢睿.炎症性肠病症状量表在炎症性肠病中的应用[J].中国临床研究,2023,36(1):50-54. [31] ZHOU Y,LI C,CHEN M,et al.Impact of continuous care on quality life of patients with inflammatory bowel disease based on multi-disciplinary cooperation on WeChat platform[J].Technol Health Care,2024,32(6):4909-4918. [32] 黄立敏,倪颖,童琛晔,等.初次及重复IVF-ET不孕患者希望水平及影响因素分析[J].中华健康管理学杂志,2021,15(5):474-478. [33] 江君,蔡鸿敏,林蔚仁.基层医院维持性血液透析患者家庭关怀度与希望水平相关性分析[J].中华现代护理杂志,2015,21(10):1125-1129. [34] ZHONG G Q,LIN B H,XIAO C X.Hope levels and resilience in patients with severe novel coronavirus pneumonia: The current situation and a correlation analysis[J].Int J Gen Med,2021(14):1959-1965. [35] 李华明,张晓霞,刘琼芳,等.肿瘤复发患者希望水平及影响因素研究[J].中国循证医学杂志,2016,16(1):36-40. [36] 南楠,李卉,田丰.炎症性肠病患者合并焦虑和抑郁状态的影响因素[J].中华炎性肠病杂志,2020,4(3):217-222. [37] BIALEK K,SADOWSKI M,ADAMCZYK-GRUSZKA O,et al.Level of basic hope and symptoms of anxiety and depression in women after miscarriage[J].Arch Med Sci,2024,20(1):332-338. [38] ZHU W,GAO J,GUO J,et al.Anxiety,depression,and sleep quality among breast cancer patients in North China:Mediating roles of hope and medical social support[J].Support Care Cancer,2023,31(9):514. [39] CALVO-SCHIMMEL A,HAMMER M J,CONLEY Y P,et al.Greater symptom burden and poorer quality of life outcomes are associated with the co-occurrence of anxiety and depression during cancer chemotherapy[J].Semin Oncol Nurs,2025,41(2):151809. [40] 高楠,陆慧敏,汪茜雅,等.克罗恩病患者健康相关生存质量研究及其影响因素[J].中华消化内镜杂志,2022,39(6):489-492. [41] FENG B,LIN L,LI L,et al.Glucocorticoid induced group 2 innate lymphoid cell overactivation exacerbates experimental colitis[J].Front Immunol,2022(13):863034. [42] ZHANG F,GUO L,SHI J,et al.Choline metabolism in regulating inflammatory bowel disease-linked anxiety disorders:A multi-omics exploration of the gut-brain axis[J].Neurobiol Dis,2024(191):106390. [43] SHANG X,GU F,BIAN Q,et al.Effects of a written expression-based positive psychological intervention on the psychological status of patients with inflammatory bowel disease:A randomized controlled trial[J].Gastroenterol Nurs,2021,44(6):437-448. [44] SEHGAL P,UNGARO R C,FOLTZ C,et al.High levels of psychological resilience associated with less disease activity,better quality of life,and fewer surgeries in inflammatory bowel disease[J].Inflamm Bowel Dis,2021,27(6):791-796. [45] ZHOU M,WANG M,LUO D,et al.The mediating role of resilience between caregiver burden and hope among patients with inflammatory bowel disease[J].Nurs Open,2024,11(8):e70001. [46] BANERJEE R,PAL P,HILMI I,et al.Primary caregiver burden and undiagnosed mental health illness in out-patients with inflammatory bowel disease-A multicentric prospective survey from the IBD Emerging Nations' Consortium[J].Indian J Gastroenterol,2024,43(6):1156-1167. [47] LEVENSTEIN S.Embracing complexity:What determines quality of life in inflammatory bowel disease?[J].Eur J Gastroenterol Hepatol,2004,16(12):1253-1255. [48] WANG M,LU X,LIU M.The mediating effect of psychological resilience on the level of mindfulness and general well-being in patients with inflammatory bowel disease[J].Ann Palliat Med,2021,10(8):9215-9222. [49] 胡松柳,刘士龙,马健力,等.以实战型人才培养为导向的MDT+PBL+CBL教学法对放疗科规培住院医师的教学效果评价[J].现代医院,2025,25(1):161-164. [50] KOK K B,BYRNE P,IBARRA A R,et al.Understanding and managing psychological disorders in patients with inflammatory bowel disease:A practical guide[J].Frontline Gastroenterol,2023,14(1):78-86. [51] ROHDE J A,SAFFER A J,ZHAO X.Health discussion network characteristics among a sample of people with inflammatory bowel disease[J].Chronic Illn,2024,20(1):105-116. [52] FITZPATRICK J A,MELTON S L,YAO C K,et al.Dietary management of adults with IBD - the emerging role of dietary therapy[J].Nat Rev Gastroenterol Hepatol,2022(19):652-669. [53] NAPOLITANO D,DI VINCENZO F,ORGIANA N,et al.The inflammatory bowel disease care manager:Italian state of the art[J].Ann Gastroenterol,2024,37(1):37-45. |